SUDEP Alaska is a support, education and awareness program for people in Alaska impacted by Sudden Unexpected Death in Epilepsy. SUDEP Alaska is composed of a network of family members and friends who have lost loved ones to epilepsy.
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When epilepsy is diagnosed, it affects the whole family. Sometimes the practical problems of daily living – from insurance, to jobs, to medical care – may seem overwhelming. At other times, it helps just to talk to people who understand what its like to live with epilepsy.
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The CAN Volunteer program provides opportunities for people with epilepsy, their family members and friends to support the programs and services offered by Epilepsy Foundation Alaska.
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Speak Up Speak Out (SUSO) is an advocacy program designed to promote involvement by people with epilepsy, their families and friends in government and legislative activities.
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The annual summer camp is held in July in Oregon and August in Washington. Children will experience archery, rock climbing, canoeing, hiking, swimming, arts/crafts, campfire games and much more.
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Many people in the community do not know how to recognize or respond to seizures. EFAK will provide education and training to groups of any size in the community. Most education can be done online or by providing materials about epilepsy and seizure response. However, if the group would prefer an in-person training, EFAK will work hard to find a local representative to give the training in-person at no cost.
Through federal legislation in 2008, Epilepsy Centers of Excellence (ECoE) were established in four regions and sixteen sites around the country to better serve veterans living with epilepsy.
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