SUDEP Alaska is a support, education and awareness program for people in Alaska impacted by Sudden Unexpected Death in Epilepsy. SUDEP Alaska is composed of a network of family members and friends who have lost loved ones to epilepsy.
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When epilepsy is diagnosed, it affects the whole family. Sometimes the practical problems of daily living – from insurance, to jobs, to medical care – may seem overwhelming. At other times, it helps just to talk to people who understand what its like to live with epilepsy.
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Speak Up Speak Out (SUSO) is an advocacy program designed to promote involvement by people with epilepsy, their families and friends in government and legislative activities.
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Many people in the community do not know how to recognize or respond to seizures. EFAK will provide education and training to groups of any size in the community. Most education can be done online or by providing materials about epilepsy and seizure response. However, if the group would prefer an in-person training, EFAK will work hard to find a local representative to give the training in-person at no cost.
Through federal legislation in 2008, Epilepsy Centers of Excellence (ECoE) were established in four regions and sixteen sites around the country to better serve veterans living with epilepsy.
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The Epilepsy Foundation thinks that kids have big hearts and are able to do amazing things. We created the Kids Crew with three areas in mind where we believe you can excel in your journey with epilepsy.
The program is free to join and is for kids ages 14 and under of all abilities. If you don’t have epilepsy, we still want you to join. Often, siblings, friends, and relatives of those with epilepsy are the best advocates. We are looking for those who want to learn, spread awareness, and make a difference. And have fun, too!!
Learn more HERE.
